Navigating SMA in a Relationship: Alyssa and Jason

For Alyssa, living with spinal muscular atrophy (SMA) made dating feel daunting. Then she met Jason, and everything changed. Jason saw Alyssa as the whole vibrant person she is, and they quickly realized how much they had in common: a love of music, an interest in video games, and a strong sense of humor. Over three years later, the two are building a life together with Jason as Alyssa’s partner and full-time caregiver. 

Today, Jason helps with Alyssa’s power soccer team, and Alyssa supports Jason’s new passion for cooking. Together, they go to patient conferences and events to meet other SMA community members. 

The authentic love that Alyssa and Jason share offers a profound perspective on the power of self-acceptance and communication. Together, they navigate the raw complexities of their interabled relationship, proving that while it can be challenging at times, vulnerable connection is deeply empowering. 

Watch the videos below to hear Alyssa and Jason’s story of falling in love and how they make their interabled relationship work.

Meet Alyssa and Jason: Learn about how they met and their journey from falling in love to moving in together. 

Alyssa and Jason dig deeper into their day-to-day life together and discuss Jason becoming Alyssa’s primary caregiver, how they like to spend time together, and what they’ve learned through this journey.

You may also be interested in

Nathan Photo

Spinal Muscular Atrophy

Living with SMA - Nathan's Story

Marci’s Story Photo

Spinal Muscular Atrophy

Marci’s Story, SMA Diagnosis

Kim sitting outside on a dock

Spinal Muscular Atrophy

Overcoming Mountains with SMA

Ashley in the parkside

Spinal Muscular Atrophy

Traveling with SMA: Ashley's Perspective

Mayu's Story, Challenges in MS Photo

Multiple Sclerosis

Mayu's Story, Challenges in MS

Living with lupus Photo

Lupus

Living with lupus: Hazura’s story